- GIST Support International
GIST Support International has introduced a new resource: A webpage and printed
booklet entitled "Understanding Your GIST Pathology Report" authored by two
expert pathologists and edited by Julie Royster. This comprehensive booklet covers
the following topics: Diagnosing GIST, Pathology Methods for GIST, Pathology Analyses
for GIST, GIST Prognosis: Risk of Recurrence or Aggressive Behavior, Pathology Reports
for GIST, GIST Pathology Questions and Terminology, More GIST Pathology Resources.
- Searchable Database
for Financial Assistance in the US
For people living with cancer in the US, there is now a searchable database of financial
resources. The database was created by a coalition of cancer support organizations
in the US, called the Cancer Financial Aid Coalition (CFAC). The database is intended
to be a user-friendly tool that compiles national funding opportunities.
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If you or someone you love is a legal US resident without health insurance, you
may wish to use this searchable database to find out about local health coverage
options within your home state. This tool will help you find the health insurance
best suited to your needs, whether it's private insurance for individuals, families,
and small businesses, or public programs that may work for you. It was created to
help consumers under the health insurance reform law, the Affordable Care Act.
- European Cancer Patient Coalition
(ECPC)
The Max Foundation is a proud Associate member of European Cancer Patient Coalition
(ECPC). Established in 2003, ECPC is the voice of the European cancer patient community,
uniquely representing the interests of all cancer patient groups from the major
to the rarer cancers. It has been established to represent the views of cancer patients
in the European healthcare debate and to provide a forum for European cancer patients
to exchange information and share best practice experiences.
- Cancer Financial Aid Coalition
(CFAC)
CFAC is a user-friendly search tool designed to help people facing cancer locate
financial resources. The search database is organized by a coalition of financial
assistance organizations, including The Max Foundation, joining forces to help cancer
patients experience better health and well-being by limiting financial challenges.
- ASH 2009 Recollections, as told by a fellow advocate
This article is a summary of the 2009 ASH conference written by a CML survivor and
advocate. Note that it is an unofficial account of the meeting. Please follow the
link for the English version and click here for the Spanish version.
- iCMLf- International Chronic
Myeloid Leukemia Foundation
The iCMLf is a Foundation established by a group of hematologists with a strong
interest in CML with the mission of improving the outcomes for patients with CML
globally. The foundation is currently registered as a charitable foundation in England
and Wales but their charter is global.
- CML Advocates Network
The CML Advocates Network is a worldwide virtual network of non-profit organizations
supporting patients with Chronic Myeloid Leukemia (CML) and their relatives. The
network helps by sharing knowledge and best practice, supporting campaigns, and
educating advocates how to build and grow patient groups.
- UICC, International Union Against
Cancer
The International Union Against Cancer (UICC) is the leading international non-governmental
organization dedicated exclusively to the global control of cancer. Their mission
is to connect, mobilize and support cancer organizations and individuals with knowledge
and skills to be effective and their vision is a dynamic global community of connected
cancer control organizations, professionals and volunteers working together to eliminate
cancer as a major life-threatening disease for future generations.
- Chronic Myeloid
Leukemia: An Update of Concepts and Management Recommendations of European LeukemiaNet
The purpose of this scientific article, published in November 2009, is to “review
and update the European LeukemiaNet (ELN) recommendations for the management of
chronic myeloid leukemia with imatinib and second-generation tyrosine kinase inhibitors
(TKIs), including monitoring, response definition, and first- and second-line therapy.”
The study was conducted by key opinion leaders in the field of CML.
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CML Earth is a social networking site created by Novartis with the mission of providing
members of the CML global community with a place to give and receive support, make
valuable connections and share personal experiences.
