Posted by Erin Schwartz on January 16, 2012
Families with children diagnosed with CML are not alone. In fact, the CML community stands by your side. Some people may not know that the CML Advocates Network, which The Max Foundation is part of, has a special section on their website devoted to pediatric CML called Junior CML Advocates. This section, developed in partnership with the International CML Foundation (iCMLf), has an updated list of publications which may be of interest to families.
On an innovative note, we recently came across an interesting article that talks about how Gleevec pills are being made in a more palatable form to enable kids to take them more easily. It is not yet clear how to access this type of pill, but it is something to ask about locally in case it could be available in your home country.
The CML Advocates Network and The Max Foundation both have the capacity to connect physicians and families with pediatric specific questions to the iCMLf, an organization very interested in helping. We invite families to visit the Junior CML Advocates to learn more and we look forward to the opportunity to support families facing CML.