Posted by Pat Garcia-Gonzalez on July 19, 2012
The ‘What is MY PCR?’ campaign is a community driven - global awareness campaign aimed to increasing awareness of the need to regularly monitor treatment for CML, leading to the optimization of clinical outcomes. The campaign will feature ‘What is MY PCR?’ buttons as well as patient journals and other materials which will be made available among members of CML patient organizations and CML patients in the US and around the world. The ‘What is MY PCR?’ campaign will be launched around CML Awareness Day, September 22, 2012, through a partnership among CML patient organizations and key opinion leaders on CML.
While RT-PCR testing is one of the key tools to predict outcomes for CML for patients on TKI therapy, few patients are systematically monitored as per the ELN schedule. In some countries, PCR testing is available yet not always offered to patients. Patients might not be aware of the importance and need for such monitoring, and many of them do not know their PCR levels. In Emerging Countries, many hospitals simply do not have the capability to perform PCR testing, or if available, access is limited due to costs. There is a need to increase awareness in the patient community of the importance of being regularly tested, informed and understand PCR levels.
Patient organizations who wish to benefit and join this campaign will have access to the campaign tools, and be listed on the www.whatismypcr.org website as a campaign partner. Through the website, it will also be possible to order free buttons in many languages, available on a first come first served basis. If you would like to find out more about the campaign, or to become a campaign partner, feel free to download the campaign overview (PDF) and write to your usual contact at The MAX Foundation, or to firstname.lastname@example.org.
We look forward to welcoming your group as a “What is MY PCR” partner!