9/22, World CML Day, marks the one-year anniversary of the "What is MY PCR" campaign. In honor of both World CML Day and the campaign's anniversary, we are excited to announce that we are launching a campaign impact survey for individuals who have participated in the campaign over the past year.
The survey is a special opportunity for participants of the campaign to contribute their voice and help shape the campaign moving forward. The survey is designed to help us measure the success of the campaign and identify ways in which we can strengthen it for 2014.
The survey will be open from September 2013 to December 2013. In early 2014 we will use the data received to compile a report that will be made publicly available.
It only takes 5 minutes to complete, so get involved and share your voice! To take the survey and/or join the campaign, visit: www.whatismypcr.org.
About the Campaign:
In 2013, the "What is MY PCR?" campaign has a new question for people living with CML: Is your PCR on the IS? The hope is that friends around the world start asking their doctors, "Is my PCR on this IS?"
What is "IS", you might be asking...it stands for International Scale (IS) and it is a way of standardizing PCR testing within labs. The "What is MY PCR" website has now been dressed up with information about IS . Anyone interested is able to request a new "Is my PCR on the IS?" button, which comes with an IS PCR FAQ. We invite you to tell your friends in the CML community about this great resource.
Order your FREE button(s)!
The ‘What is MY PCR?’ campaign is a global awareness campaign aimed to increasing awareness of the need to regularly monitor treatment for CML, leading to the optimization of clinical outcomes. The campaign features FREE ‘What is MY PCR?’ buttons for patients and physicians, as well as FREE PCR FAQ booklets available through the website and Partner organizations around the world.
The PCR campaign now has 38 Partners Groups from 32 countries! Groups around the world are always welcome to join, just contact us.
Call to action: 10 ways to get involved
1. Sign on in support. Visit the website, add your name to the campaign and share your message about PCR.
2. Order your button(s). Free “What is MY PCR?” buttons are available in many languages on the whatismypcr.org website for patients and physicians.
3. Share with your physician. Order an “ASK ME” physician button for your doctor and bring it to your next visit to open a dialogue about PCR.
4. Show off your button(s). On International CML Day (9/22), patients and physicians are encouraged to wear your “What is MY PCR?” buttons and include them in any events.
5. Read and share the FAQ. Read the FAQ on PCR developed by Dr. Michael Mauro and share the information with patients in your country.
6. Invite friends to join. Post information about the campaign via Facebook, Twitter and email.
7. Promote the campaign. Download the logo in any language to make posters and flyers to put around your local clinic.
8. Add your photos. Browse through the campaign photo gallery and upload your own image, especially pictures with “What is MY PCR?” buttons adorned!
9. Become a Partner. Patient groups around the world are invited to join the campaign as Partners, just go to Contact Us at the website.
10. Talk about PCR! This campaign aims to get people discussing PCR, what it means, how it can be accessed and how knowing your levels can improve CML treatment outcomes.
The role of MAX:
The platform for the "What is MY PCR?" campaign is being coordinated by The MAX Foundation to serve the global community of patient organizations. The campaign has been developed with the broader CML community in mind, in hopes that every group around the world will feel part of the initiative.
"What is MY PCR?" is seen as a patient driven initiative led by the coalition of CML-focused organizations who are Campaign Partners in raising awareness about the importance of CML treatment monitoring. Every group is invited to become a partner and any group is welcome to use the campaign as a way to encourage discussion around the benefits of PCR.