As the global cancer divide widens, so do the challenges and the need for equitable solutions. We believe the solutions must be enacted collectively: among newly diagnosed patients and experienced patient leaders; hand in hand with care providers; across private and public sectors.

Together, we are the solution.

Letter from the CEO

Pat Garcia-GonzalezLate in 2015, as we launched The Max Foundation’s new website, we began mapping the future. Ask anyone in the team and they will tell you my favorite feature of the site is right on the homepage: the map. I am obsessed with the map! Front and center, the interactive map pinpoints our offices, treatment solutions, partnering patient associations, support programs, and more. Our map carries so many intrinsic details about our organization in a single frame. But every time I look at it, I can see it is incomplete.

While our website map does a great job showing much of our current work, what you can’t see is how our work is expanding and deepening all the time. It captures a fraction of what our team is doing around the world in partnership with all of you. And it doesn’t show the potential of all I envision we will do with so many more of you.

Continue Reading Pat's Letter

In 2015, we spent a great deal of effort mapping the future state of The Max Foundation. We looked internally and externally, at our current partnerships and beyond. We asked big questions and aimed for bigger answers. Finally, we incorporated all these aspirations into a strategic plan and began moving into what our future holds.

Typically, an annual report looks back and showcases the many wonderful things done within the year. In our case, there is plenty to say – we saw tremendous partnerships grow, developed advanced solutions for access to treatment, and continued to advocate on behalf of people around the world facing cancer. These are all worthy stories– and there are many shared in the following pages.

But this year, we go one step further by daring ourselves to look into the future. Our 2015 Annual Report looks ahead – not just for our organization, but to the future of cancer care and global health at large. Allow me to share three aspects of what I see in our collective future.

  1. The future will be reliant on deep collaboration. We believe in designing and focusing our partnerships to measurably address health inequities, always staying true to our core values. We are shaping and reshaping these partnerships to be equipped for the future.
  1. The future will empower patients as advocates for their health. As patients around the world gain more understanding of their diseases, they will continue to voice their needs and concerns. It is our responsibility to ensure we are hearing them clearly and doing all we can to support them as agents of change.
  2. The future will be here sooner than we think. What worked yesterday may not work tomorrow, so we are moving purposefully into the future by creating elastic solutions to support patients in the next decade.

As you read our report, know that we are reflecting on 2015, planning for 2020, and leaping forward for impact every day.

Join us in mapping the future,

Pat Signature

Pat Garcia-Gonzalez
Chief Executive Officer, The Max Foundation

A Path to Dignity & Hope

We view our model as a continuum that can move people from patient to supporter to advocate and leader. This approach was purposefully created to build a global network of people championing the rights of cancer patients around the world.

A Continuum of Care

The Max Foundation Model

Mappingthefuture
Treatment Access
“Without your help, [gaining access to treatment] would not have been possible…today, my patients are receiving their treatment without needing to move to another country and away from their families.”
—Physician in Paraguay
Tomorrow: Our approaches will translate to cutting-edge immuno-oncology therapies being researched by top scientists today.
106
Countries with access initiatives
406,799
Doses delivered to patients

Patient Access Programs

Patients have better access to high quality cancer medications in more countries than ever before given the global approach we helped pioneer over a decade ago alongside industry.

Preferential Pricing

Public hospitals and labs in 68 low- and middle-income countries can get the latest technology for specified molecular tests and instruments through us at discounted prices.

Gifts In Kind

Through a channel we call Max Access Solutions, treatment is donated directly to us and distributed to designated patients, in countries without commercial solutions, by our dedicated partner.

Mappingthefuture
Support & Education
“This workshop was an unforgettable event in my life, the first of its kind. It has helped me to get rid of fear from this disease. I have become more courageous.”
—Patient Workshop Attendee in India
Tomorrow: Workshop participants of today become the patient leaders and community advocates of tomorrow.
34
Workshops Hosted
1,135
Patients Receiving Coaching
109,575
One-on-One Support Services

Gathering for a Purpose

Our disease-specific workshops create a space for patients and families to meet and learn from professionals as well as each other; through panels, testimonials, and even sharing a meal.

Compliance through Connection

Treatment-related health outcomes are improved thanks to the “Day by Day” program, which comprises phone calls, informational materials, and meetings orchestrated by our Latin American team.

Guidance Through the Patient Journey

Every day, our global team speaks with hundreds of families across the globe helping them navigate their local health systems, with caring support and knowledge to help them navigate their local health systems.

Mappingthefuture
Capacity Building
Tomorrow: Acquired knowledge and skills today result in leaders actively participating in health systems negotiations in the days ahead.
215
Leaders Trained
5
Capacity Building Conferences

A Network of Action

The Max Global Network is a collective of outstanding patient associations and community leaders who share our mission and vision. Our capacity building efforts prepare these organizations to improve local health systems and foster social change within their communities.

Ahead of the curve on health systems training

Our Health Technology Assessment (HTA) Workshop in Marrakesh was one of a kind for the continent. More than just a training, the workshop became a forum for resources and expertise, and strengthen our work throughout Africa and the Middle East.

Sharpening our skills

What do advocates across Asia Pacific, Latin America, South Asia, and Africa all have in common? Concrete skills in fundraising, social media, and advocacy gained from attending regional capacity-building conferences in Malaysia, Costa Rica, Morocco, and Hyderabad.

2015 Max Global Network

Highlights from 2015 showcasing our efforts to provide access to treatment, education, support, and capacity building – all aimed at helping people around the world face cancer with dignity and hope.

Increasing Hope, Reducing Stigma

While treatment may save the life of a cancer patient, community support is vital to their wellbeing. Through simultaneous events during the Maximize Life Campaign throughout the month of October – from awareness-raising walks, to neighborhood performances, to readings for children – participants play an active role in building support systems within their local community.

Making PCR Approachable

Diagnostic testing is a complex subject, so the My PCR campaign provides advocates with simplified messaging and tools to explain the importance of molecular testing. My PCR was rebranded to make it more accessible, and was promoted at the 2015 American Society of Hematology Meeting.

Spotlighting our India Partners

In April, The Max Foundation and Friends of Max formalized a long-standing collaboration in India by signing a landmark Memorandum of Understanding that underscored our partnership for supporting cancer survivors.

PCR Awareness on 9/22

Our goal on World CMLDay was simple: show our gratitude for health professionals while elevating the importance of molecular testing. Over 200 patients, caregivers, and advocates delivered messages of thanks to their health professionals in September.

Maximize Life Campaign Stats
48

Maximize Life Events

11,000

Event Participants

1,050

Global Volunteers

My PCR Stats
36

My PCR Grants

33,250

My PCR Outreach

8

Conference Booths

See the Members of the Max Global Network
70

Max Global Network Partners

Africa & Middle East

24 organizations

A.G.I.L du Sénégal

AMACAS

Association de Lutte Contre la Leucémie

AMAL

Association Leucémie, Espoir Mali

Can Survive

Childhood Cancer Foundation South Africa

Childhood Cancer Initiative

CML Patients’ Foundation of Ethiopia

CMLSA

Crusaders Club Ministry

Emirates Association for Cancer Support

Ghana Patient Support Group

Groupe d’Appuiaux Survivants du Cancer

Henzo Kenya

Israel CML Patients Organization

Leukemia & GIST Advocacy Fraternity of Uganda

MaxCare Nigeria

Nakuru Hospice

NGO APSBES/Diligence Group

Patient’s Friends Society-Jerusalem

People Living with Cancer

Tanzania Patient Group

YeEthiopia Cancer Society/MWECS

Asia Pacific

11 organizations

Children’s Cancer Foundation

ELGEKA

IZUMI

Max Family

Max Miracle

Max’s Vie

MaxSmiles

Shanghai Roots
and Shoots

Taiwan Bone Marrow Transplant Association

Touched By Max

Zero Club

59

Countries Represented

Central Asia & Europe

10 organizations

Associação Portuguesa contra a Leucemia

Association of Patients with Hemoblastoses

CML Association
of Serbia

CML Patient Association Armenia

National Cancer
Council Mongolia

Osanna

Polish Association for CML Patients Aid

Slovenian Lymphoma and Leukemia Patient Association, L&L

The Alliance of CML Patients of Georgia

Uzbekistan CML Patients League

Latin America

21 organizations

ABRALE

Agalemo

Alianza Anticáncer Infantil, A.B.P.

Asociación Amor a la Vida

ASAPHE

ALMA

ASOPALEU

Asociación Hondureña de Lucha Contra el Cáncer

AMELEG

Corporación Nacional Maxi Vida Chile

Esperantra

Esperanza y Vida

Fundación Alas de Vida

Fundación Colombiana de Leucemia y Linfoma

Fundación Esperanza Viva

Fundación Unidos Contra el Cáncer

Grupo Unido de Leucemia A.C.

Luz de Esperanza

Luz de Vida

Manitas la Pulsera de Leucemia

Un Paso Max

South Asia

4 organizations

Bangladesh CML Supporting Group

Blood Cancer Society Nepal

Children Cancer Foundation Nepal

Friends of Max

Leap Forward for Impact

“Through our strategic plan, The Max Foundation is striving for transparency so you, our supporters and collaborators, will see your critical role in our mission to help people around the world face cancer with dignity and hope.”

Paula Boultbee
President of the Board of Directors, The Max Foundation

Our Map to the Future

In 2015, we kicked off a five-year strategic plan to systematically address the needs of patients, families, doctors, and communities facing cancer in low- and middle-income countries. Through scalable solutions, the three-tiered plan aims to reach even more patients, with the goal of meeting the targeted global health needs of 2020.

Where are we now?

Our first objective is to more fully focus, measure and chronicle our work to build on our strengths.

Where are we going?

We are looking to the future to expand our unique patient-centered solutions and help close the cancer divide.

How do we get there?

We are bolstering our work by improving systems, diversifying funding, and expanding reporting.

Mapping the future of

Max Access Solutions

Max Access Solutions

In the Future

In 2015, we launched Max Access Solutions as the optimal way to execute treatment access. Through adaptable channels, The Max Foundation receives products as gifts in kind or through preferential pricing 7 from partnering companies that share our common vision. Through third-party distributors, 8 we deliver the treatment directly to physicians around the world. Through Max Access Solutions, we ensure a closed supply chain so products end up in the hands of the oncology patients who need them. 9

Patient Assistance Programs

Today & Tomorrow

Early on in The Max Foundation’s work, we began developing international patient assistance programs alongside industry partners, many of which are still administered today. Within these programs, medical practitioners reach out to us and request treatment access for their patients. 4 We work with pharmaceutical companies to verify a patient’s eligibility 5 and the pharmaceutical companies completes the delivery of the drug. 6 The Max Foundation monitors the drug dosing, adherence and adverse events, and reports this back to the donor company.

Bulk Donations

In the Past

Before The Max Foundation, bulk donations were commonly used by pharmaceutical companies 1 to donate their treatment through governments or institutions. 2 These government institutions were often over-tasked with managing multiple donations, meaning treatment was in danger of being mishandled, stored beyond expiration, or diverted from those who need it. 3

We are paving the way for new treatment access pathways.

We can see them before they even exist.

Become part of the solution.

Financial Overview

In 2015, we had significant new in-kind gifts – charitable giving in the form of medical equipment and treatment. Funding increased in key areas, with over ninety percent of our funds going directly to programs which benefit patients. Our strong collaborations allow The Max Foundation to put 91 cents of every dollar into supporting people facing cancer.

Revenue

Total: $4,916,482

  • Patient-Oriented Service Contracts: 39%

  • Gifts in Kind: 37%

  • Corporate Grants & Sponsorships: 22%

  • Private Giving: 1%

  • Interest & Miscellaneous: 1%

Gifts in Kind

Through generous donations of pharmaceuticals, medical devices and related products provided by our industry partners, we are able to offer access to treatment and diagnostics on humanitarian grounds to specified individuals facing cancer in countries with no other channels. The addition of these individualized product donations has expanded both our reach and patient services.

Expenses

Total: $3,245,711

  • Program Expenses: 91%

  • Management & General: 8%

  • Fundraising: 1%

2015 Remarkable Moments

Highlights from 2015 showcasing our efforts to provide access to treatment, education, support, and capacity building – all aimed at helping people around the world face cancer with dignity and hope.

Keeping Max’s Story Alive

In October our friend and colleague Fan, a patient himself, interviewed Pat about Max’s story. The interview was posted on our website in honor of Max’s birthday. With over 250 playbacks, their intimate conversation reminded us how it all began for The Max Foundation.

Chai for Cancer comes to the USA

A fundraising initiative that started in India to help people facing a cancer diagnosis in that country crossed the ocean! Volunteers hosted 10 chai addas (tea parties) along with special guest, South Asia Region Head, Viji Venkatesh, who brought stories about what it means to live with cancer in India. Our heartfelt thanks to all who participated so generously, bringing new friends to our collective mission.

Getting Engaged in Seattle
After moving to our new headquarters in Seattle, Washington, we celebrated with an open house networking event for our neighbors, supporters and global health colleagues. We created an ‘around the world’ experience – complete with passports to introduce our work to the community. We are excited to be building our future in Seattle.
Partnering with Nurses

Our first workshop for assistive health care workers trained 25 nurses in southern Africa about the journey a cancer patient takes and ways to support them. The workshop encouraged the health care workers at the front lines of caring for these patients.

Training for the Future

The Health Technology Assessment (HTA) Training Workshop equipped cancer advocates from Africa and the Middle East with a greater understanding of the role of health technology assessment. The Max Foundation collaborated with health economy experts Professor Panos Kanavos of the London School of Economics and instructor Jean Mossman to host the training.

Recognition for our Efforts

Our CEO, Pat Garcia-Gonzalez humbly accepted two honors in 2015 on behalf of patients and partners everywhere: the Emerging Region Support and Partnership Prize from the International CML Foundation and the National Cancer Institute’s first Global Cancer Medicine Humanitarian Award.

Hands Full of Patient Art

Oncology professionals across the globe embraced patient art while reading The Lancet Oncology, a periodical that featured colorful artworks from our Colors of Hope Collection on the cover of every issue in 2015. The spotlight was an amazing way to bring patient art into the lives of healthcare professionals.

 

You Make It Possible

To Our Donors

Thank you to our generous private donors who support global cancer survivors through their contributions to The Max Foundation. You are helping people near and far face cancer with dignity and hope. We are grateful for your ongoing support, and look forward to further engagement in the year ahead.

Corporate Donors and Sponsors

We extend our gratitude to our corporate donors and sponsors for collaborating in our mission. We deeply value our shared commitment to patients around the world.

Affiliations

Collaboration with these global affiliations include ongoing joint projects as well as shared initiatives and resources.

Executives and Team

Board of Directors

Our Board of Directors is comprised of professionals dedicated to serving our mission. The Board provides governance and fiduciary oversight, along with guiding policy and assessing organizational performance goals.

Paula Boultbee
President of the Board
Principal at PTB Consulting LLC

Jerry Scott, CPA
Treasurer of the Board
Chartered Global Management Accountant

David Tingstad
Secretary of the Board
Beresford Booth PLLC Law

Pat Garcia-Gonzalez
Board Member
CEO of The Max Foundation

Robert Farmer
Board Member
CML Survivor & Photographer

Tracey Higgins
Board Member
Edmonds Community College

Grant Rubenstein
Board Member
Rosen~Harbottle Commercial Real Estate

Medical Advisory Board

Our Medical Advisory Board includes specialists who are key global opinion leaders in the field of oncology. Based around the world, these expert physicians are formative in leading research and managing patient care at worldwide
centers of excellence.

Hematology Advisors

Michele Baccarani, MD

Jorge E. Cortes, MD

Brian J. Druker, MD

Francois Guilhot, MD

Andreas Hochhaus, MD

Timothy Hughes, MD

Michael J. Mauro, MD

Javier Pinilla-Ibarz, MD, PhD

Jerald Radich, MD

Neil P. Shah, MD, PhD

Moshe Talpaz, MD

Oncology Advisors

Matías Chacón, MD

George D. Demetri, MD

Peter Reichardt, MD

Jonathan Trent, MD

Strategic Innovation Advisory Board

Hailing from both the public and private sectors, our Strategic Innovation Advisory Board includes leaders in the fields of global health, fundraising, and communications who lend their advice, skills and expertise to our collective goals.

Carolyn Blasdel, FNP-BC

Rhonda Curry

Gilberto de Lima Lopes, Jr., MD, MBA, FAMS

Michele Galen, J.D.

Teresa Guillien, MPA

William E. Heisel, Journalism BA

Jerald Radich, MD

Carlos Rodriguez-Galindo, MD

Kristofer Rogers

Lawrence N. Shulman, MD

Dr. Andy Stergachis, PhD, BPharm

The Max Foundation Team

The international team of The Max Foundation work with passion and purpose to develop and execute our programs in support of patients, families and communities living with cancer.

Leadership Team

Pat Garcia-Gonzalez, Chief Executive Officer

Erin Schwartz, VP of Strategic Partnerships & Communications

Danielle M. Matia, Region Head for Africa & Middle East

Inés García González, Region Head for Latin America

Mei Ching Ong, Region Head for Asia Pacific

Viji Venkatesh, Region Head for South Asia

J. Michael Wrigglesworth, Director of Global Information Technology Solutions

Ann Kim Novakowski, Senior Program Officer, PAP Compliance Coordinator & IT Solutions Liaison

Global Headquarters, Seattle, Washington

Craig Anderson, Director of Information Technology

Josué Blanco, Communications Officer

Barbara Carpenter, Assistant to the CEO

Paula Lacy, Administrative Assistant

Michael Root, Program Officer

Erin Lindsay Schneider, Program Officer

Argentina

Mercedes Arteaga, Program Officer & Regional Project Manager for Latin America

María Victoria Duhalde, Local Program Coordinator for Argentina, Perú, & Ecuador

Melissa Fazio, Local Program Coordinator for Argentina

Christian Ricardo Rey, Program Coordinator for Argentina

Chile

Lyat Granati, Local Program Coordinator for Chile, Bolivia, & Paraguay

Dominican Republic

Martha Rosario Molina, Local Program Coordinator, for Domincan Republic

Nilexis Bernard Rodríguez, Local Program Coordinator for LMC Diá max Día

Guatemala

Evelyn Berduo, Local Program Coordinator for Central America & Caribbean

India

Aparna V. Bhatta, Web Developer

Phillip Fernandes, Administrative Assistant

Sharon Gonsalves, Program Officer, Regional Head North & East India

Santosh S. Kadam, Manager: Accounts/Office & Personnel

Priyanka Kandalgaokar, Program Officer India, Administration Team Supervisor

Prasad Kothekar, Administrative Assistant

Shirly K.V., Volunteer

Azim Mohd, Driver

Ashika Naik, MaxStation

Jaya Namboodari, Administrative Assistant

Beena Narayanan, Program Officer, Regional Head South India

Sudha Samineni, Program Officer India, Administration Team Supervisor

Manish Shukla, Web Developer

Yogesh Sindwani, Web Developer

Shilpi Singh, MaxStation

Julie Soundarva, Housekeeping Staff

Vijayayalakshmi Sundaram, NOA Coordinator and Program Officer/Regional Head West & Central India

Ameya Surve, MaxStation

Komal Surve, Administrative Executive and Assistant MaxStation

Vidya Tahilramani, MaxStation

Shinu Thomas, MaxStation

Malaysia

Zarindatul Arizah Binti Zah, Project Executive

Nor Aisya Binti Nor Azham, Project Executive

Waheeda Binti Hasbullah, Project Executive

Wen Huei Fan, Graphic Designer

Gin Nin Gow, Project Executive

Yee Jia Heng, Project Executive

Shirleen Low, Project Executive

Nor Aina Binti Abd Rahim, Administrative Executive

Mexico

Cynthia Figueroa Guerra, Local Program Coordinator

Gisela Corchado Salgado, Local Program Coordinator

Philippines

Nelia Medina, MaxStation

Senegal

Mame Fall, MaxStation

South Africa

Catherina Scheepers, MaxStation

Thailand

Wirat Sae-Kuai, Senior MaxStation

Piyapong Siriviriyanum, MaxStation

Uzbekistan

Sukhrob Saliev, MaxStation

The Max Foundation is leaping forward to impact the future of global health. We are focused on achieving measurable results through innovative solutions which allow people all around the world to face cancer with dignity and hope.

Partner With Us

We need your support to propel our mission into the future. By giving to The Max Foundation, you allow people around the world to face cancer with dignity and hope.

Donate Today