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Education and Training

On World Cancer Day 2020, we are reflecting on what progress means to us

For the 20th anniversary of World Cancer Day, we asked our global team members, physicians, patients, caregivers, and advocates to share what progress in cancer care means to them. [vc_video link='https://www.youtube.com/watch?v=0oU9SvmhtQM'] [epq-quote align="align-center"]Progress means all cancer patients get the treatment they deserve.[/epq-quote] World Cancer Day, celebrated on February 4, is a global initiative that aims to raise awareness about cancer education, care, and prevention. The initiative is led by our friends at the Union for International Cancer Control (UICC), a member-based organization whose mission is to reduce the global cancer burden and promote equity. [vc_video link='https://www.youtube.com/watch?v=v6XjeLCjzjs'] [epq-quote align="align-center"]Progress in cancer care means that our patients...

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Finding Value in the Patient Experience

Health systems around the world are strained due to the high burden of costs. In an attempt to guide decision-makers in their choices on behalf of patients, the topic of value frameworks was born. These value frameworks evaluate all aspects of cancer treatment: clinical benefit, side effects, and improvement in patient symptoms or quality of life. But given the complexities of the multitude of health systems around the world, it is not a straightforward discussion. And right now, it's a dialogue driven by thought leaders and health economists from the US and Europe. But there are critical voices is missing...

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Solidarity Ties Through the Mountains

Nestled in the mountains of Peru, there's a place called Cusco where you'll find the cancer patient group, Lazos Solidarios (Solidarity Ties). Yusef Herrera, created Lazos Solodarios to help cancer patients in this remote region in 2009 and today, the organization is supporting families facing CML and LLA, many of them children. Yusef, a dentist, became a committed advocate to close the cancer divide between these rural communities and their access to treatment and support....

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Vulnerability

I found myself reflecting about vulnerability. In a way, vulnerability is an impact. After hours of phone calls throughout the year, families have opened themselves up to me. The vulnerability is not just a spur of the moment but hopefully built on mutual trust and respect. I gain a new perspective about vulnerability – it draws out your strength when you respond to it with care....

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Researching CML Patients in India

A new study in Clinical Epidemiology and Global Health features the Glivec®Patient Assistance Program (GIPAP) and reveals that "chronic myelocytic leukemia (CML) is diagnosed at an earlier age in poorer populations than in more affluent populations." The study focused on India's CML population to investigate other possible contributors to early age at onset. The team of authors include our very own South Asia Region Head Viji Venkatesh, and Max CEO Pat Garcia-Gonzalez, as well as Paul H. Levine, Kunal Ajmera, Brenna O’Neill, Heather J. Hoffman. The study is only available to the public for a limited time so if you know a physician...

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Let’s Come Together, Shall We?

This year, the Malaysia team set a goal of creating deeper connections in our local patient initiatives. We wanted to see our patient community connect with each other. We changed the format of our patient workshops from seminars into intimate, casual gatherings. “Let’s Sama-Sama” (Let’s Come Together) is a space for patients to build stronger relationships with each other and to encourage more sharing and learning alongside disease education. I forgot to tell you an important fact! In our culture, Sama-Sama is a notion of togetherness: “We’re in this together, you got my back.” Last Sunday, we organised our very first “Let’s Sama-Sama” gathering in a nearby park. The sun...

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Follow the Patient Journey

Join Rosario as she shares her journey from cancer patient to advocate and leader.
See Rosario's Journey
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