Education and Training

Finding Value in the Patient Experience

Health systems around the world are strained due to the high burden of costs. In an attempt to guide decision-makers in their choices on behalf of patients, the topic of value frameworks was born. These value frameworks evaluate all aspects of cancer treatment: clinical benefit, side effects, and improvement in patient symptoms or quality of life. But given the complexities of the multitude of health systems around the world, it is not a straightforward discussion. And right now, it's a dialogue driven by thought leaders and health economists from the US and Europe. But there are critical voices is missing...

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Solidarity Ties Through the Mountains

Nestled in the mountains of Peru, there's a place called Cusco where you'll find the cancer patient group, Lazos Solidarios (Solidarity Ties). Yusef Herrera, created Lazos Solodarios to help cancer patients in this remote region in 2009 and today, the organization is supporting families facing CML and LLA, many of them children. Yusef, a dentist, became a committed advocate to close the cancer divide between these rural communities and their access to treatment and support....

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Vulnerability

I found myself reflecting about vulnerability. In a way, vulnerability is an impact. After hours of phone calls throughout the year, families have opened themselves up to me. The vulnerability is not just a spur of the moment but hopefully built on mutual trust and respect. I gain a new perspective about vulnerability – it draws out your strength when you respond to it with care....

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Researching CML Patients in India

A new study in Clinical Epidemiology and Global Health features the Glivec®Patient Assistance Program (GIPAP) and reveals that "chronic myelocytic leukemia (CML) is diagnosed at an earlier age in poorer populations than in more affluent populations." The study focused on India's CML population to investigate other possible contributors to early age at onset. The team of authors include our very own South Asia Region Head Viji Venkatesh, and Max CEO Pat Garcia-Gonzalez, as well as Paul H. Levine, Kunal Ajmera, Brenna O’Neill, Heather J. Hoffman. The study is only available to the public for a limited time so if you know a physician...

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Let’s Come Together, Shall We?

This year, the Malaysia team set a goal of creating deeper connections in our local patient initiatives. We wanted to see our patient community connect with each other. We changed the format of our patient workshops from seminars into intimate, casual gatherings. “Let’s Sama-Sama” (Let’s Come Together) is a space for patients to build stronger relationships with each other and to encourage more sharing and learning alongside disease education. I forgot to tell you an important fact! In our culture, Sama-Sama is a notion of togetherness: “We’re in this together, you got my back.” Last Sunday, we organised our very first “Let’s Sama-Sama” gathering in a nearby park. The sun...

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Rising Sun, Part 2: Not Just Another Love Story

People, by nature, are not perfect and sometimes we forget how to love each other well. The dinner at the Rising Sun 2015 meeting prepared by MaxSmiles Thailand, was a reminder to me. Admittedly, I attended the dinner with the intention of eating as much Thai food as I could. Wirat, Thailand Senior MaxStation, reassured me that I would not be disappointed that night. He was totally right; who would’ve thought the dinner would feed my soul....

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Rising Sun 2015 Expands the Capacity of Patient Advocates Throughout Asia Pacific

More than 45 patient advocates came together for the 2015 Rising Sun meeting in Bangkok, Thailand on October 9-11. Rising Sun, the Asia Pacific regional event, is an initiative driven by The Max Foundation in partnership with local patient groups that aims to enhance the capacity of patient-advocate leaders, increase the well-being of patient communities, and raise disease awareness through learning and sharing opportunities....

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Nurses Filling the Gap for Patients in Southern Africa

In an ideal world, a diagnosed cancer patient would receive disease and treatment information from their physician and healthcare workers at the clinic. With access to technology, they would broaden their knowledge and gain additional support from a patient group. Family and community members would also play a supportive role in searching for information and support....

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