The Max Foundation Dignity and hope in the face of cancer Wed, 21 Mar 2018 20:51:03 +0000 en hourly 1 The Max Foundation 32 32 123558845 Reflections Following the Loss of a Beloved Cancer Advocate Fri, 02 Mar 2018 21:32:03 +0000 The passing of our dear friend, advocate and colleague Ferdinand, has shaken the close-knit global chronic myeloid leukemia (CML) community. CML, a rare form of leukemia that used to be fatal, now is treated with innovative targeted therapies commonly referred to as TKIs. There has been unprecedented global access to these TKIs and this has fostered the development of one of the strongest global patient communities for a rare cancer. Ferdinand, from Nairobi, Kenya, was a loved member of this community. Since his passing earlier this week, questions arose regarding what happened, how come we could not provide more help,...]]> 28388 Let our Global Playlist of Inspiring Songs Rock Your World Cancer Day! Sun, 04 Feb 2018 02:02:00 +0000 28064 Finding Value in the Patient Experience Fri, 26 Jan 2018 00:51:25 +0000 Health systems around the world are strained due to the high burden of costs. In an attempt to guide decision-makers in their choices on behalf of patients, the topic of value frameworks was born. These value frameworks evaluate all aspects of cancer treatment: clinical benefit, side effects, and improvement in patient symptoms or quality of life. But given the complexities of the multitude of health systems around the world, it is not a straightforward discussion. And right now, it's a dialogue driven by thought leaders and health economists from the US and Europe. But there are critical voices is missing from this discussion: patients and patient advocates. ]]> 28077 Solidarity Ties Through the Mountains Tue, 09 Jan 2018 20:33:29 +0000 Nestled in the mountains of Peru, there's a place called Cusco where you'll find the cancer patient group, Lazos Solidarios (Solidarity Ties). Yusef Herrera, created Lazos Solodarios to help cancer patients in this remote region in 2009 and today, the organization is supporting families facing CML and LLA, many of them children. Yusef, a dentist, became a committed advocate to close the cancer divide between these rural communities and their access to treatment and support.]]> 28005 20 Years – A Letter to Max Wed, 29 Nov 2017 18:33:40 +0000 Dear 17-year-old Max, today I can say that you have changed the world more than I could have ever imagined. You live with us and through us and we feel your spirit in every action we take. Day in and day out you light a spark in each of us.]]> 27770 20 Years of Gratitude Wed, 22 Nov 2017 21:00:42 +0000 This Thanksgiving holiday, we are grateful for 20 years of support from our global community. Thanks to each and every one of you for all you have done to bring dignity and hope to people facing cancer around the world.]]> 27847 Inspiration Abounds at Fred Hutch Mon, 20 Nov 2017 20:46:39 +0000 Getting lessons from one of the masters of chronic myeloid leukemia stands out as one of the highlights of my year. We are also fortunate to be given a sneak-peak of current research projects the team is working on and in this, we see a glimpse of the future, we have so much to look forward to!]]> 27785 Lan’s Story Wed, 08 Nov 2017 18:28:54 +0000 Lan is a young, enthusiastic, Vietnamese woman living in Ha Noi, who refuses to be ordinary. On World CML Day 2017, Lan decided to let her treatment journey story to be heard. Lan was diagnosed chronic myeloid leukemia when she was 23 years old. Initially, she was hesitant to share her story with anyone.]]> 27726 Access to Treatment is Access to Life: A Message From Princess Dina Tue, 31 Oct 2017 20:44:21 +0000 “Lack of access to treatment” is a five-word sentence that is bandied about a lot in the global advocacy world. The academic-style labeling of the term at times numbs us from the real horror on the ground from what “lack of access to treatment” actually looks like. Not at The Max Foundation.]]> 27703 Ribbons Around the World Fri, 27 Oct 2017 17:26:47 +0000 As many of you know, 2017 is an important year for us at The Max Foundation, as it marks our 20th year as an organization. More importantly, it marks 20 years of partnering with dozens of bold, brave and dedicated patient advocacy organizations who are truly making a difference in the lives of people facing cancer in their communities. For Max’s Day on October 19th, we wanted to make sure that everyone was included in the celebration, if only from a distance so we introduced a new tradition among our global community. ]]> 27712