Ten years ago there were no resources in Africa and the Middle East for people facing cancer. Today, chronic myeloid leukemia (CML) represents an example of a disease where access to treatment has been made widely available. As a result, we have seen patients become leaders, advocating for support and care.
—Danielle Matia, Region Head for Africa & Middle East
In the past 15 years, The Max Foundation has shaped the access paradigm for cancer treatment drugs for cancer patients in Africa. To support individual patients, The Max Foundation has built communities around them, outside of their direct families. These patient support associations bring together patients from all walks of life who are united by a common diagnosis of cancer.
To foster the creation of patient support associations, The Max Foundation’s unique model starts by identifying patients who work closely with their physicians to manage their disease. Through mentoring, the idea of starting a local support group is introduced and the patient is encouraged to take the lead in developing this concept with the treating physician and other fellow patients. Working from the bottom up we have facilitated the launch of patient support organizations throughout Africa.
To date, guided by The Max Foundation staff, this effort has seen the creation and growth of patient support associations in 12 African countries. The Max Foundation has also collaborated with patient associations already present in six other countries. All these groups are now members of the Max Global Network and benefit by participating in The Max Foundation-initiated advocacy work, capacity building, and campaigns.
Alongside our global network, CML Life Africa, a disease-specific advocacy initiative that includes participants in North Africa, South Africa, and Sub-Saharan Africa, unites the continent by sharing experiences and knowledge.
CML Life Africa, part of the Max Global Network, is the collection of patient support associations focused on chronic myeloid leukemia (CML). This network aims to bring these groups together to share resources, discuss experiences, and learn from each other’s challenges and successes.
Each year, the CML Life Africa workshop gathers patient leaders from across Africa to provide training, capacity-building, and medical updates on CML. The CML Life Africa network extends its reach in the continent with the launch of new CML groups and advocates. The CML Life Africa working group elevates the voice of patients so their concerns and questions about access to treatment are addressed.
The Health Technology Assessment (HTA) Training Workshop aims to equip cancer advocates from Africa and the Middle East with a better understanding of the role of health technology assessment in health systems. To further our efforts to improve access to treatment, The Max Foundation collaborated with health economics expert Professor Panos Kanavos of the London School of Economics and experienced health systems consultant Ms. Jean Mossman to organize the HTA workshop.
The Health Technology Assessment trains advocates in:
Read the latest blog post out of Africa and Middle East.
When Ka came to Thailand for access to treatment, she had the chance to join the MaxSmiles patient group meetings. K...