Education & Training

Creating Space for Community

How we continue providing emotional support for people facing cancer throughout COVID-19

Emma Radich
Diagnostics & Monitoring Education & Training

In India, Patient Meetings Reduce Stigma and Unite Hope

Every year our South Asia team organizes 15–20 meetings that unite hundreds of the patients we serve, their families, caregivers, and physicians. These meetings provide a safe and comfortable platform for everyone to share their insights and learn from each other’s experiences with cancer.

Shalini Subramanian
Diagnostics & Monitoring Education & Training Treatment Access

Becoming a Mother While Facing Cancer

Having a baby is a major decision, especially for Thao from Vietnam, a cancer patient who had to pause her treatment in order to have a safe pregnancy. Thao shares how she found support through her patient group, her family, and The Max Foundation.

The Max Foundation
Education & Training

Rising Sun, Cancer Summit of The Max Foundation

Rising Sun 2018 has more than 60 participants from 18 countries, consisting of patient leaders, physicians, pharma representatives, advocates, caregivers, and volunteers. Growing beyond our original scope of capacity building, this year we have brought Rising Sun to another level: Access to Treatment is Access to Life – Everyone Has a Role!

Heng Yee Jia
Education & Training Patient Support & Advocacy

Finding Value in the Patient Experience

Health systems around the world are strained due to the high burden of costs. In an attempt to guide decision-makers in their choices on behalf of patients, the topic of value frameworks was born. These value frameworks evaluate all aspects of cancer treatment: clinical benefit, side effects, and improvement in patient symptoms or quality of life. But given the complexities of the multitude of health systems around the world, it is not a straightforward discussion. And right now, it's a dialogue driven by thought leaders and health economists from the US and Europe. But there are critical voices is missing from this discussion: patients and patient advocates.

Erin Schwartz
Education & Training Treatment Access

Solidarity Ties Through the Mountains

Nestled in the mountains of Peru, there's a place called Cusco where you'll find the cancer patient group, Lazos Solidarios (Solidarity Ties). Yusef Herrera, created Lazos Solodarios to help cancer patients in this remote region in 2009 and today, the organization is supporting families facing CML and LLA, many of them children. Yusef, a dentist, became a committed advocate to close the cancer divide between these rural communities and their access to treatment and support.

Victoria Duhalde
Education & Training

Vulnerability

I found myself reflecting about vulnerability. In a way, vulnerability is an impact. After hours of phone calls throughout the year, families have opened themselves up to me. The vulnerability is not just a spur of the moment but hopefully built on mutual trust and respect. I gain a new perspective about vulnerability – it draws out your strength when you respond to it with care.

Waheeda Hasbullah
Education & Training

Researching CML Patients in India

A new study in Clinical Epidemiology and Global Health features the Glivec®Patient Assistance Program (GIPAP) and reveals that “chronic myelocytic leukemia (CML) is diagnosed at an earlier age in poorer populations than...

The Max Foundation
Education & Training

Not Just a Diagnosis, Cancer Touches so Many Lives

Cancer is a life-changing event; not just a medical condition. When cancer undoubtedly affects the patients, it also changes the lives of people around them. Having cancer may change patients’ priorities, causing them to make different life choices.

Waheeda Hasbullah
Education & Training

Let’s Come Together, Shall We?

This year, the Malaysia team set a goal of creating deeper connections in our local patient initiatives. We wanted to see our patient community connect with each other. We changed the format of our patient...

Waheeda Hasbullah